top of page

Resources For Familiesar.

CHARGE Syndrome Foundation - Home

www.chargesyndrome.org

National Down Syndrome Society

666 Broadway, 8th floor

New York NY 10012

(800) 221-4602

Prader-Willi Syndrome Association

5700 Midnight Pass Rd., Suite 6

Sarasota FL 34242

(800) 926-4797

Support Organization for Trisomy 18, 13, and Related Disorders

2982 South Union Rochester NY 14624 (800) 716-7638

 National Down Syndrome Society

666 Broadway, 8th floor

New York NY 10012

(800) 221-4602

National Organization for Rare Disorders (NORD)

55 Kenosia Ave.

P.O. Box 1968

Danbury CT 06813

(800) 999-6673

Genetic Alliance

4301 Connecticut Ave., N.W.

Suite 404

Washington DC 20008

(202) 966-5557

Turner's Syndrome Society of the U.S.

14450 T.C. Jester, Suite 260

Houston TX 77014

(800) 365-9944

Chromosome Deletion Outreach

P.O. Box 724

Boca Raton FL 33429

(561) 395-4252

5p- Society(Cat Cry Syndrome)

P.O. Box 268

Lakewood CA 90714

(888) 970-0777

Klinefelter Syndrome and Associates

P.O. Box 119

Roseville CA 95678

(888) 999-9428

(also has material on Triple X syndrome)

Autism and Asperger's resources

www.phdinspecialeducation.com/autism-aspergers/

bottom of page